tag:blogger.com,1999:blog-2652969788944382876.post6951051379564772734..comments2023-12-01T03:24:54.638-07:00Comments on My Happily Ever After: Myotonic DystrophyLaurahttp://www.blogger.com/profile/14612023360938737992noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-2652969788944382876.post-4066568657386338352023-03-27T15:08:57.186-06:002023-03-27T15:08:57.186-06:00Thank you Dr agumba for the ALS treatment and it w...Thank you Dr agumba for the ALS treatment and it works perfectly. Dad is fine now. I will keep on sharing good news of your natural product. Anyone who needs ALS natural reversal or every other deadly disease to get cured, here is Dr agumba contacts. Email dragumbasolutioncenter@gmail.com whatsapp +2349032173881 .Jones Rosaryhttps://www.blogger.com/profile/05131209116535123368noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-4807152947326092552018-04-02T22:22:31.499-06:002018-04-02T22:22:31.499-06:00Abby, my mother, brother, aunts, cousins all have ...Abby, my mother, brother, aunts, cousins all have myotonic dystrophy and nearly all had pacemakers. They are familiar with Rochester and participated in studies. Feel free to respond and I can put you in touch with one of them if you’d like. - Lindsey Unknownhttps://www.blogger.com/profile/01303434311725460744noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-46473365536887429942017-10-01T08:20:38.480-06:002017-10-01T08:20:38.480-06:00Hi. I am 20 and have this condition. However, I he...Hi. I am 20 and have this condition. However, I hear that they are working on treatments for this and ways to improve quality and length of life. Just a month ago I had surgery for a pacemaker because this condition can affect your heart. I am located close to UVA hospital in Charlottesville, VA and I have heard really good things about Rochester, NY as well. Both sound like a long trip for your family, but they may be worth checking out. These are two of the best hospitals in the country for this condition. I hope this is a help for you.Abby Eaneshttps://www.blogger.com/profile/17094466329633902784noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-83506118326268935042016-05-20T20:45:16.945-06:002016-05-20T20:45:16.945-06:00I am praying and hoping for a cure for Myotonic Dy...I am praying and hoping for a cure for Myotonic Dystrophy. I lost my fiancé seven months ago. He was only 53. He suffered with multiple symptoms. Christopher is my hero, he fought a courageous battle. God bless and help everyone living with Myotonic Dystrophy and may He give strength to their families and caregivers. Keep fighting, never give up!Katehttps://www.blogger.com/profile/08615572892588703139noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-17971227435729176322016-05-20T20:43:29.942-06:002016-05-20T20:43:29.942-06:00I am praying and hoping for a cure for Myotonic Dy...I am praying and hoping for a cure for Myotonic Dystrophy. I lost my fiancé seven months ago. He was only 53. He suffered with multiple symptoms. Christopher is my hero, he fought a courageous battle. God bless and help everyone living with Myotonic Dystrophy and may He give strength to their families and caregivers. Keep fighting, never give up!Katehttps://www.blogger.com/profile/08615572892588703139noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-11890337603528181942016-02-29T17:01:47.848-07:002016-02-29T17:01:47.848-07:00Possible treatment with erythromycin
http://myoto...Possible treatment with erythromycin<br /><br />http://myotonicdystrophy.com/http:/mytonicdystrophy.com/common-antibiotic-might-help-treat-myotonic-dystrophy-type-1-promising-therapy/<br /><br />Anonymoushttps://www.blogger.com/profile/18359360810350678121noreply@blogger.comtag:blogger.com,1999:blog-2652969788944382876.post-67081839270737679652012-05-18T15:57:07.171-06:002012-05-18T15:57:07.171-06:00HI laura my name is Michelle I live in Provo it is...HI laura my name is Michelle I live in Provo it is nice to meet other people in Utah with this condition. I also have MMD and so does my daughter she is only 1 year and 9 mo. old. We found out she had it at birth as does my older and younger brother so I know what you're going through. I know they do testing at Athena Laboratories its on the eastern side of the states through blood work to see how many abnormal genetic repeats he has. I don't know if he's done that or not if thats how they found out he has the disease. Anyway depending on the number it gives you a general idea of how bad the disease really is. One thing you need to keep in mind is is that this disease is very different for every person. My older brother has a very severe form of it while me and and my younger brother have a relatively normal life. I also have my hands locking up as well as the muscles in my legs and feet but I still get along, as well as all the other symptoms. There is a lot the learn about and a lot to know if you or he would ever like to talk I would be happy to help. There are also support groups they meet up in Taylorsville every second Saturday of the month. You can also visit the MDA clinic they are up by primary childrens they see this all the time and can help too. <br /><br />my e-mail is turboedteg@yahoo.comMichelle, Dallas and now Charlotte!https://www.blogger.com/profile/15501737852179038227noreply@blogger.com